She was so sweet and quiet during most of the Christmas eve activities...she was surprised that she had a stack of gifts in front of her. She says with surprise, " Are all these for me?" and after she opened them all she said "Thank you!" I really think she was enjoying herself. The kids were excited and she watched them open their gifts. But after a bit she wanted to go lay down. So after a couple hours of a nap..she wakes up...yelling at us "oh shut up will you!" She must have said this about 6 times...I finally said to her "Mom stop that its really rude to tell people to shut up!" She was quiet after that. But this is not the way my mom would ever act. So I know its part of the dementia. So I was wondering if any of you have similar experiences after a big event such as, Christmas?
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I say all this to say, this yr very little was mentioned about Mom's bday, their Anniversary and Christmas Day tho we did acknowledege those days. It was kind of sad because my Mom has always made this time of yr a big deal, this yr she could hardly care less and I followed her lead. No worries, no anxiety, no complaints, NO E.R. visits.
Once I learned to just go with the flow...the days flow easier. It's different for sure but it is what it is.
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As she aged, and dementia set in, it was increasingly hard for her to handle the reversal in that dynamic.
She devolved into looking for something she could get by the case and give each person the same thing--like jam, etc.
Then she finally just gave up on trying to gift, or even do cards.
She finally had a hard time participating in family gatherings...my folk's house was a tri-level; the only bathrooms were on the second level--difficult to manage getting to it from the main living area, too.
She gradually just kept to her room, with it's on-suite bathroom in easier range, as well as the quiet.
Mom, OTH, gave up doing presents long ago, unless she found some special item; gave up trying to make the date deadlines for holidays though....
Mostly, makes collages, if/when she feels guilty about something, or wants to guilt someone else, veiled in "sweetness and light".
She's gotten more complicated over the years, but there is still some bits of her better self in there somewhere.
She usually never came out of her room much; at holidays, it got harder and harder to get her to come out, even to sit with us at the table.
We started taking dinners to her, but she usually chose to eat whatever she wanted from the food she stashed in her room.
She isolated herself extremely, and tried very hard to make it someone else's fault--that was her brain injuries, mental / dementia issues talking--because she used to be ALL about doing Christmas and holidays, making them special for kids.
==Quiet, routine, "safe zone" of familiarity, make getting thru holidays easier, for those with dementias and other ills that affect behaviors & ability to understand.
It can be difficult to realize that your loved one can no longer tolerate long and loud family events. Try instead to recognize signs he or she is getting agitated and have a quiet room for them to go to. It can be difficult, but understand shorter visits typically work better as the disease progresses. If your loved one is in a community, taking them out for the holiday can be too challenging for them, so your family may have to plan to have a celebration there instead.
Medications may be used, but remember these can increase fall risks.
It can be difficult to realize that your loved one can no longer tolerate long and loud family events. Try instead to recognize signs he or she is getting agitated and have a quiet room for them to go to. It can be difficult, but understand shorter visits typically work better as the disease progresses. If your loved one is in a community, taking them out for the holiday can be too challenging for them, so your family may have to plan to have a celebration there instead.
Medications may be used, but remember these can increase fall risks.