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The mail will build up in the mailbox, the trash will build up. She’s going to need groceries. She can’t even walk down the driveway. Certainly not in the winter!!!!What do I do???
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Riverdale Feb 2020
Maybe you just give an ultimatum. If she wants food,heat,water,telephone the rules have to change. Why should everyone be subjected to her state of insanity? I hear how tired you are. I don't know your whole history with her but I imagine it has wrecked havoc on your nerves. I have been in that place with my mother. She has showed signs of mental illness around me going back to when I was 10 and earlier in stories I heard from my late father. It hasn't been chronic but there have been enough times to make me disengage for my own sanity. Thankfully she is cared for in AL. Ironically it was a young doctor in a NYC hospital who told me my mother should never be living alone due to her medical conditions. I heeded that advice,made sure she knew about it and she never returned to her apartment.

I feel for you greatly. I hear how tormented you are. Something has to change and however that comes about only that will bring a different reality to this nightmare you have been living.
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Well, this SUCKS and there's no other way to say it. Hard to believe the idiots are sending a NINETY FIVE year old woman who lives in a HOARD home to live alone. That's incompetence at its absolute worst. Just b/c she scored a 26 on a MOCA test does not mean she's competent to LIVE ALONE for godsake! It just means she does not have DEMENTIA. I like Joann's idea about calling her doctor. But at this point, you may have no other choice but to accept the fact that your mother is going to live and die on HER terms, at home, alone. It's a matter of time before she's back in the hospital again with another panic attack or shaking episode or whatever.

Here is where you have to decide how much you will and will not do for her, I suppose. Like I had said to you in an earlier post, this isn't about HER, it's about YOU. Make a list of what/when you will go over and what you will do for her. Maybe once a week; bring some food, pick up the mail, etc. Otherwise you are going 'no contact' which I know you don't want to do. So you have limited choices here, which is really unfortunate.

Also think about hiring someone to shovel the snow, pick up the mail, do the grocery shopping, etc.........the outside stuff since she won't allow anyone inside the home. He can leave the bags on the stoop. You can pay him a pre arranged fee per visit or something like that. That will cut down your workload. As far as the phone calls go, limit those to one per day MAX. Let the rest go to voice mail. Since she insists on living alone, there is ONLY so much help she can get, and that includes phone calls.

Sending you a hug. I'm really sorry things turned out this way, Elaine. I'm frankly shocked at the system for doing this to both of you.
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I would make sure I got something in writing saying the Hospital felt Mom was competent to go home. This way your tail is covered. Did APS evaluate? If so, get a copy of their findings. Put everything in a file. If u want, do what u can for Mom but don't stress urself put. In a few weeks, run by the place and see how it looks. If bad, call APS again. If the neighbors have complaints, then tell them to call APS. That way when the sh*t hits the fan, you have documentation you tried to get Mom help and the system refused to help.

Allow her bills to go unpaid. Her lawn to get overgrown. In my Township that gets you a letter and a fine. Eventually, the electric will be turned off and the water. Where I live, you cannot live in a place with no running water. The police had to go and take a women, who hoarded, out of her house because it was unsanitary to stay in a house where there was no running water. When they remove her, let the County take over guardianship. This way, they will have to do for Mom. She will be placed easier than u can do.
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lealonnie1 Feb 2020
That lets her off the hook legally, but nothing lets her off the hook emotionally. That is where Elaine struggles b/c there is nobody else to care for her mother at all! I think it's impossible NOT for her to be stressed out. How does she allow a 95 y/o woman to have her water turned off? I don't think I could do it, if it were me.

LOVE your ideas Joann, and I'm not trying to 'argue' with you. Just looking at the situation from an emotional standpoint vs. a logical one.
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Elaine, let this play out. Mom will undoubtably call 911 tomorrow or the next day.

Talk to her doctor about how to get a neuropsych exam which will show her inability to reason.

Call the local Area Agency on Agency about getting a needs assessment.

Call the eldercare attorney tomorrow and discuss the options.

((((Hugs))))))
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Yeah well thank you everyone for your advice. It came around full circle and bit me in the ass HARD!!! Your advice was wonderful but unfortunately the law is on her side. No 2 ways about it here in New York State. She passed all her tests. I was crying on the phone at the social worker and crying to the nurse at her family doctor. The family doctor called the hospital doctor and said they were letting her go home. There was nothing more they could do!!! They didn’t even bathe her or wash her hair like I told them yesterday. I tried. I tried everything. The doctor called APS and they closed the case because she was in the hospital. She called me at 4:30pm and said she was home. The hospital told her I came up earlier and she was sleeping so I left and they called a cab for her. It was the hospital van and the hospital paid for it. It was a total lie. I never went to the hospital. I told the social worker over tears to tell my mother I love her but I’m done!!!
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pamzimmrrt Feb 2020
I am so sorry for you, and your mom, You did your best, and I hope you have all the records of your talks ( just dates and who you spoke to may help) This is a nightmare we all hope we don't have to have, and I am amazed it came to them letting her go home, alone. to a situation like this.
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It is time for you to break away before you lose your sanity.
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Mentally challenged or not mom likes the attention. She sounds similar to a lady who was on 2 hour season finale of Hoarders, season 9 I think. She was a trip and fall a half
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rovana Feb 2020
I agree and perhaps if Elaine steps back, depends more on hired services, separates herself from mom's drama, she will feel less stressed.
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Elaine, please keep in mind that  one battle is not the war.
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If you pick her up at the hospital, this just gives them more reason to think she is fine for discharge. the hospital is operating from a standpoint of protecting themselves legally. I'm not defending the hospital, I'm just hoping you can step back and see what is going on. The hospital is going to discharge her because she says she wants to be discharged. She has that legal right. It's nuts considering the way she lives, but it is true.
As for your mom being angry with you. It looks to me that she is an angry person who is going to be angry with you no matter what. Just because she is angry, does not mean that you are doing exactly the right thing.
If she wont' give you the checkbook, the bills don't get paid. Tell the social worker that she won't give you the checkbook. Then when the power goes off and you call for a welfare check, the social worker sees the full extent of your mother's inablitly to cope, of her illness. You can monitor the situation. When it gets bad, call for the welfare check. your mom does not cooperate, she does not respond to your tears, your pleas etc. That is what is going to make her end up in AL. Let it happen. Don't bail her out,or it never will.
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I did what I could. Case closed. Nothing more I can do about it. I wish things were different but they aren’t. I’m done fighting for her safety. I couldn’t live with myself if I went no contact. Never went over there. Nobody to plow. Nobody to mow the lawn. Nobody to get her mail. Nobody to mail her bills. I couldn’t live with myself to carry on as if my mother didn’t exist. I did everything I could. I will keep stepping back but she writes the bills I mail them. She gets the garbage together and I take it down the end of the driveway. I have to do this. I can’t go no contact. She’s 95 1/2 now. But the good news is I never went to the hospital year or today. The cab sent her home. She called me when she got home. She didn’t know what I was doing behind her back. She has a doctors appointment on Thursday that she said she would take call a bus to and from by herself. She doesn’t want any home visits from doctors or home health aids. I told my brother everything. He said he’ll come up at the end of February to see her. I did my best. I was all prepared for her to go to a facility. I appreciate everything you have all done for me. You helped me so much these last few days. But please respect my wishes to still see my mother, back off her when I need to, and walk away from her when she is verbally abusive to me. I love you all. I couldn’t have gotten through all this without you. Thank you, Elaine
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cherokeegrrl54 Feb 2020
Elaine...do what is best for you. Please take care of yourself, you do matter in this whole mess of a situation.
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Dear Elaine, I could not find this thread, but finally did and want to say I've been following along and keeping you and your Mom in my thoughts.
You have done all the right things to help your Mom even if she fought you every step of the way. I hope you find some peace of mind for you. Take care of yourself as you are taking care of her.
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You should see your mom when you have time and patience. If you don't that may drive you crazy too.

Social worker should advise you that mom should go to a nursing home for the 30 days they give you on medicaid/medicare. If they offer, take it. They won't ask again. This will give you time to breathe and figure out the next step.
LOng story = short. Aunt was given the 30-60 days stay. After that time, the social worker at the nursing home told me I had a few days to figure out where aunt was going. I handed her the papers for the 6 pack I found a few minutes away from me. She was stunned. She never had a person find a place so quickly. It's not my first rodeo..
My MIL put my FIL in the 30 day medicare nursing home, just so she could rest. She was up all the time, waiting on him, get him this, that, and the next thing. It does tire you out... If you need the rest and knowing she needs 24/7 care, then take it.
Then again, if you don't have POA, or she doesn't allow you to make decisions for her, then, I guess, it's out of your hands. Don't shut her out. Be there when you can, and tell her when you cannot. If it's too much for you to handle one day, then stay away, go another day.
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If she is gettIng cranky that may be UTI, and/or old age. They are allowed to get cranky. It doesn't mean you have to sit there and take it. But you can ask her to please quiet down a bit. You should be POA and it's hard for her to acknowledge she needs help and to make these little changes. It's like the elders and their cars, they cannot hand over the keys quietly. They are not in control anymore.. :(
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Yes I would go visit but if possible rest 1st. No I don't think u tell her about assisted living. Let SW evaluate her and make recommendations. Make sure you talk honestly about your concerns but not in front of her as it will likely not go well.
Let SW know u cannot meet in morning because u will just be getting off work.🙏🏾💪🏾♥️
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I agree, you need to do what you feel is right for you. Just except what you can't change and do what you feel you need to.

Please come back and tell us how things are going. You can also come back and just vent. My daughter was taught years ago that when she was made at us write it all down. What happens, by the time you get to the end, the anger is not as bad.
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