In 2013 my husband had major heart surgery where they removed the sac around his heart. He spent six weeks in bed. They tried & tried to give him PT but he refused. Now he’s just a lump that sits all day & makes demands of me. Because of a cane, he has now destroyed his shoulders & it’s to late for surgery.
After talking in length to my stepson I found this is not new for my husband. He’s been acting like this for 50 years! Every time he’d get injured or sick he played the “poor me” card & milked it as long as he could!
I have to do EVERYTHING & he is continually pulling me away from what I’m doing to refill his coke or get him something from the kitchen.
I have disabilities of my own (my back is completely destroyed & you can actually hear my bones crack) & I’m not a young woman anymore. I’m full of resentment & bitterness that I just can’t get under control.
I don’t have any friends, haven’t been to church in 18 months, don’t have time to pray or read my Bible, and my family all live a very long way away & don’t have time to listen to me! And I really don’t care to talk to them & just complain.
I’m one hot mess!!!
For some reason I am still up, but am falling asleep now. I may answer more tomorrow, but I just wanted to tell you that you have been heard. Maybe some of the other night owls will respond. I am praying for you now. Good night.
God is our strength, a very present help in times of trouble.
He is the only one who can make this better for you. The only one to give you what you need to endure. Without HIM, you have no hope.
So please do whatever you have to, to make time for prayer, reading His word, and getting back to church.
This labor of love is ever so difficult. Without God's help, it is way more difficult.
"I can do all things through Christ which strengtheneth me"
We are all here to try and offer you love and support but as a Christian, you know who provides your true help.
You are in a rough situation and I feel your frustration through your words. My friend, Jesus is your answer, your hope, your strength, your help.
I will be praying for you. As I know others here that will as well.
We are human and left on our own we can only take so much. Don't be left on your own, call upon the one you have faith in. He loves you, he careth for you, he will help you.
You need to think about your finances. In the short term you need enough money to get yourself out of the house, by taxi if necessary, to go to church and anywhere else that will give you a life back. In the longer term you may end up looking at a separation. So do some financial planning before the excreta hits the fan. The next step is to arrange the house so that he is actually capable of finding food, water and the toilet, even if he has to crawl. Then you need to get out regularly and let him find out that he is the only one that is going to get him another coke (and if he’s getting to be fat as well as a lump, cut out the coke).
Face the fact that you are not going to persuade him to behave better. It will only happen if it becomes in his best interests to get off his butt, because otherwise he will go hungry. Take courage!
If he didn’t have me, he’d have to go to a nursing home & I don’t by any means want that!
I do appreciate your comments though, thank you.
It wouldn't overexert him, but it would get him out from four walls, and out from under your feet, and it just might spark his interest in life.
Is that something you'd consider exploring?
Try not to blame him for how he feels, but instead think about what you can do to change your own way of supporting him and living with him so that you don't end up feeling like an overworked skivvy.
Complaining to us, by the way, is absolutely fine :) Vent away!
And too, (Mike) my husband is abusive at times. He’s a large man & I’m a petite woman. I’m not big enough to drag him out the door!
I’m thinking I need to seek out counseling, I think after careful consideration, this situation goes deeper.
I too have a hard time finding my balance with all my responsibility at home and finding time for God! But I know if I don't make time for Him I suffer & things get to me much easier. I find praying at night when everyone is a sleep works best for me right now; I would love to do prayer in the morning but just don't have the time. Another thing I do is bible study online and I also have found some great sermons online to just help me get God's word in me. And one of my favorite things to do as though I haven't done it as much, but am starting it back up is talk to Him throughout the day. Thank Him when something good happens even if it is some thing little; example that you were able make a good meal or got a great parking space; thank Him for His favor over your life ( even when it doesn't feel that way). The little things do count!
You can change who calls the shots. Yes it will be hard and difficult, but ask God for help. And always take time for you tell your husband you will be unavailable for the next 15 mins then once you got that under your belt go for either more time or more breaks. There is a lot of short sermons from 15 mins, 30 mins to a few hrs on YouTube! Just food for thought, but try to get back to church!
Hugs!!
My story goes deeper & you’re right, I do need to be back in church. But going back to my old church isn’t going to happen!
Almost 18 mo. ago I got the phone call my eldest sister who had raised me from birth had gone home to the Lord. I called my pastor not knowing where else to turn for help. I had to travel 2800 mi to help my “adopted” siblings & I just needed to be there! But who was going to take care of Mike? My pastor told me he would find someone to help. The next day I flew out.
After everything was said & done & I got back home I found out nobody came to help. And my pastor called him once in a two week period! If you remember the story in 1 Sam. about Abigail & Nabel? God called Nabel a difficult man! Well, that’s Mike!! He’s a very difficult, self centered, narcissist who blames everyone & everything for his problems. I have asked him curtly on many occasions over the years if I should call him Jesus? Anyway, I can’t blame anyone for not wanting to be around him, but for crying out loud, this was 1) an emergency & 2) a great witnessing opportunity to a cranky old unsaved invalid! Nobody from “my” church even called to see how I was doing or if I even got back home safely. No, not that church.
But there is another church in my area. I went there years ago & have been invited back. And boy, do I ever need to go! I feel myself getting lukewarm. I just haven’t gone because when I was raised up you dressed up to go to church. No jeans & teeshirts!! Dresses, heels, every hair in place, etc.
I tripped & fell almost 3 mo. ago & seriously hurt my leg. I’ve been seeing my dr. every week or two since just to keep an eye on it. I can’t wear stockings or heels & am ashamed to wear a dress with my leg bandaged like a battle wound. This is shameful pride, I know. God doesn’t care what I look like because He looks at my heart & not my body. I need to prayerfully rebuke “Sunday Best” & just go!
And after careful contemplation I have realized the reason I’m resentful is because Mike just gave up! I’m from a family of fighters. My dad at age 70 worked a full day the night he passed. I wobble like a drunk sailor & need something for stability, but I refuse to give in. I don’t want anything slowing me down & I don’t feel I need it anyway. You can’t have the disabled person & the caregiver both down or struggling!
In my eyes he’s no longer a man, he’s an infant! I raised my kids, why was I given another one? I see men his age & older out walking, riding a bike, shopping with their wives, going to the movies, or other activities. And here I am with this TV zombie who refuses to move more than 2 steps to urinate. Yes, I have a urinal on my telephone table. Isn’t that lovely decor?
We have a friend who is 73-74 who has had 12 heart surgeries & still restores cars!! He is as fine as any adult male! Even he’s tried to get Mike up & going, (over the phone) but Mike always has an excuse. He doesn’t feel good, this hurts, that hurts, he didn’t sleep good, there’s a movie coming on he’s been waiting for.... The only time this man leaves his chair is to go to bed or a drs appt, And of course, if you don’t use it, you lose it, so his muscles are atrophied.
He needs hearing aids but refuses to get them because he doesn’t want “those things” stuck in his ears! Therefore the volume is turned so high I’m losing my hearing! We have a 2 story house & I go to bed hours before him & can still hear the TV in my room at the opposite end of the house!
But too, I believe part of my problem is I don’t have my mom (sister) any longer. Since she passed I have just been disconnected. Something inside of me snapped when she passed. I feel completely cut off from God! My prayer muscles also are atrophied & the last thing I want to do is read Gods Word! And this makes me very nervous. I don’t want to be spat out!! I don’t want to be separated from Him for eternity.
I hope that you will realize that as long as you are being responsible, you are doing the right thing. If you take him to a day care center, that is a good thing. he might not like it, but it is still a good thing. You are not responsible for his response.
It is not a bad thing for him to wait for what he wants. It's a good thing, whether or not he likes it. Put a timer in his room.Tell him you are taking time to pray, to study, to rest, to talk to someone, anything you want or need. It's not terrible for him to not have you at his beck and call every minute of the day. In fact, it's terrible for him and for you.
Your feelings are completely normal and understandable. In fact, they can signal you that you are being too accommodating. It is a good thing to put limits on what a person can demand from us, again-whether they like it or not.
God limits us. We don't get everything we want the moment we want it.
To me, it is time to change your behavior, until you do this, nothing will improve.
I understand that you signed up for this marriage, for life, that however IMO does not mean that you have to kill yourself trying to care for him. He is a self centered bully.
Going into AL may be the answer, and possibly should be considered. If your health continues to decline, you will be unable to care for him, and then it will become an emergency, why not plan ahead?
I wish you the best.
Your husband needs to grow up, stop the nonsense, and start treating you like his beloved wife. You need to stop treating your husband like a willful child and stand up for yourself and your own needs. What if you het hospitalized or die? What then? It's time to make some changes for both of your sakes! Good luck
You have not set any clear boundaries for him, and that is on YOU. If you are willling to put away your reading, your bible to run get him a coke you are training him how to treat you. Worse, you are not forcing him to use some of the abilities he still has physically, and he will lose more and more mobility.
Have you sat and talked to him about how you feel? About your own aches and pains, your inability to have joy of life now with him, and your feelings in general, as well as your worries about him, his losing mobility, and etc.
I would tell him that you honestly are not willing to be his servant until death while he slowly loses ability and mobility. That you two will have to live separate lives going forward if he cannot bring himself to put some effort and love into living together. I don't think that is unreasonable. Your faith would tell you that the Lord helps those who help themselves.
I am so sorry that you are going through all of this. But remember, there are some things that you CAN change here. The serenity prayer is lovely for helping one to see. You will have to form a plan of action for yourself or for yourself and him together, or you will end being simply a victim to the fates. Good luck. Hoping you find some answers and you share them with us if you do.
So you say you’re “a hot mess” and that you are worried that you are displaying unChristlike feelings toward your husband. I think you have forgotten that you are flesh. This side of heaven Christians face the same joys and sorrows that everyone faces. You are understandably exhausted and fearful, but what we have been given is a “refuge and strength, an ever-present help in trouble” Psalm 46:1-2. IF we avail ourselves of it! Jesus taught us to pray, “Give us this day our daily Bread” Matthew 6:11. He wasn’t just referring to food, but spiritual sustenance as well. Daily, we are to ask for help, for wisdom, for strength. If you aren’t doing this, your well has run dry and you are trying to get through the travails of life on your own power.
As a person who has been born again of the Spirit, you are part of the Body of Christ 1 Corinthians 12:12-27. Last night, I told you I would pray for you. My thought was that “part of the body of Christ is in distress”. You have allowed the cares of this world to separate you from the power and strength to be found in prayer, and reading the Bible, and community with other parts of the Body of Christ (the church). You are not alone in this. We may be born-again Christians, but we are still flesh. This is what happens to us when we stray too far from the flock. And now you are feeling as if you will lose your salvation. This is a lie! Do not believe it! Jesus said, ..... and the one who comes to Me, I will never cast out”. John 6:37. “Put on the full armor of God, (the Word), that you may be able to stand against the schemes of the devil”. Ephesians 6:11.
From your profile and from your post and updates, I see that there is bitterness and resentment toward more than just your husband, including the pastor of your last church.
You have been given some excellent practical advice. Here is mine:
Take a small step. Pray - even if all you can manage is “God, help me!”.
Follow the advice of one poster. Set a timer for you. Your time, to read, exercise, pray, do your crafts, etc. Tell your husband you will not be disturbed unless it is an emergency.
Call the Area Agency on Aging to see what services are available to help your husband .....and you! We found four hours a week of free respite.
Think about how you are enabling your husband to be totally dependent on you and how you can take steps to change that. It is unhealthy for him as well as you.
They are trained to care for him- don’t get burned out!
You can visit him when you want & he will eventually settle in!You have to take care of you or both of you will be in a nursing home!Stand your ground & tell them you just can not take care of him !!
Your stepson not only said that Mike has behaved badly before, he also indicates that Mike got over it each time. Surely it was different when you first got together. You need to provide the circumstances that mean he will get over it again now. Your commitment to the marriage may include 'tough love', not just being a doormat. You don’t want to get to the point where you can’t take it any more – it will break your heart to ‘fail’. Yours with love, Margaret
Just pray and pray and pray some more. God already knows and you don't even have to explain it to him. Its understood. Just talk to him like you are talking to us.
Is there a possibility that you would consider moving to Assisted Living? You would have help with your husband. You would be able to get out, go to church, gather with people that live there, go to lunch all while your husband sits like a "lump". This is a choice he has made not a choice you have made.
Even if you choose to live where you are now you could do the same.. Put dinner in the slow cooker...Set up a table for him next to his chair, get a little dorm refrigerator stock it with a days supply of his beverage of choice, a sandwich for lunch. Next thing to do is arrange for a friend to pick you up. Go get your hair done, go to lunch and maybe a movie. When you get home you can sit down and have dinner and talk about the wonderful day you had. Next day do the same thing. You don't have to go out but set up his beverage center and go for a walk. Go sit in the yard. Go read a book. Do something for you.
I think he will get the hint and will either work up a desire to get out with you or he will continue to be "The Lump"
Oh...and don't feel guilty about living your life and "forcing" him to do some things for himself.
No? 💟🐯
I have 1 minute devotional books from Joyce Meyer that start my day right. I can always get up 1 minute earlier for calm and peace for the day.
our church videos are on “Cages” right now. Perfect topics for what we’re going through. Our morning devotional is left online all day.
Please give them a try. I left my church of 60 years for this one and I love my church. I’ll be praying for you.
www.PCCWired.net
This isn't being "mean" or "not Christian" like...this is reality. If he is being a "lay-about" and not putting forth any effort or if there is the possibility for him to be re-habilitated and he just won't do it, then this falls on him. Do not for one minute feel guilty. You have a right to be upset because his decisions are robbing you both of a quality life.
I pray you have the strength and fortitude to speak up for yourself.
I guess you can always come on here to complain and get sympathy but, unless you are willing to do something to change YOUR situation, there is nothing we can do. I will pray for you.
To say you don't have time to pray or read your bible is sad. MAKE TIME!! There is no rule saying you have to be at his every beck and call. He will live without you for an hour or two. Leave the house and take yourself to lunch/dinner. When my kids were younger, I needed a break. I would leave and go treat myself to lunch with a good book. I'll be back in a few hours. One time I went and got a hotel room to just have some ME TIME! It's ok to love yourself! Trust me when you return, he will still be there!
Best wishes to you!
Your husband is doing whatever you allow him to do. Stop responding immediately to his demands. Cheerfully say, " in a minute, I'm almost done with what I'm doing." This won't change him overnight, but over time, he'll have to adapt to not having on-demand servitude.
Also, look at an independent living situation where you both could have your needs met without you giving up your life. THAT wasn't in the marriage vows. Managing his care is as good or better than making yourself his 24/7 caregiver.
Kudos.